Every year, the NDL celebrates Fragile X advocacy day and this year, it is on March 1st 2022! Advocacy Day is one day each year when we come together as a community, talk to our members of Congress and their staff about Fragile X and how the federal government can help with research investments and [...]
As the research surrounding Autism has increased, we have also seen an increase in the awareness and acceptance of Autism and other neurodevelopmental disorders. Community outreach programs are helping young adults get access to occupational therapy resources, gain valuable job experience, and learn skills to lead an independent life. […]
The National Fragile X Foundation reports that an “estimated 1.5 million people in the United States alone are impacted by Fragile X making it a leading inherited cause of intellectual disability today.” As such, creating a system of support and acceptance for those impacted is of great importance. […]
As the world continues to embrace technology, the medical industry is not shy in taking advantage of the latest technological gadgets. A historical problem within the medical field has always been access- access to a hospital, access to medication, access to competent care. […]
Since 2000, July 22nd has been designated as Fragile X Syndrome Awareness day. The goal of this day is to expand public awareness and educate those who can help. […]
Kritika Nayar, 6th-year doctoral student in the Clinical Psychology program, defended her dissertation, the culmination of her PhD program. […]
Shivani Patel, 5th- year doctoral student in the Communication Sciences and Disorders program, defended her dissertation, the culmination of her PhD program. […]
FRAXA, one of the leading Fragile X Syndrome research foundations, is starting a webinar series to continue providing important information centered around current topics in Fragile X Syndrome research. […]
Following CDC, State, and University guidelines, and to ensure the safety of our lab members and the families who participate in our studies, we have moved to remote work for all staff and students and paused all in-person participant assessment visits for the time being […]
The National Fragile X Foundation (NFXF) leads an advocacy program to help advance research and programs to help provide better opportunities and lives to those living with Fragile X and other intellectual and developmental disabilities. […]
