Fragile X Syndrome Awareness Day!

Since 2000, July 22^nd has been designated as  Fragile X Syndrome Awareness day. The goal of this day is to expand public awareness and educate those who can help. Although this is the goal of each day, July 22^nd is our chance to scream just a little bit louder, work a little bit harder, and embrace a whole lot more. Today, and every day, we work to raise awareness about Fragile X Syndrome (FXS) and the individuals it affects, educating physicians in their role of diagnosing, educating teachers and policy makers about their role in providing opportunities for people with FXS and other intellectual disabilities. Today, on the 20^th anniversary, we have much to celebrate as the theme is to celebrate, and be, extraordinary. Research has come a long way with the expansion of clinical trials and studies, but the work is not over. Today is a day to celebrate extraordinary individuals facing FXS, celebrate extraordinary individuals who are leading the fight, but it is also a day to remind ourselves that although many advancements have been made, there is still much work to do.