Seeking families to help us figure out the fragile X equation.

The Neurodevelopmental Disabilities Laboratory at Northwestern University is currently recruiting participants for an investigation intended to:

  1. study carriers of the FMR1 premutation to determine how language and other skills developed over their childhood; and
  2. identify early developmental characteristics potentially related to the FMR1 gene, and understand how they might relate to language and social traits evident in later development.

We’re searching for individuals with fragile X syndrome or with the FMR1 premutation and their family members, as well as people without fragile X or the premutation, and their families. We’re currently recruiting families from Greater Chicago, and are especially interested in Iowa families, because we work with the University of Iowa to access [with permission] individuals’ standardized test scores.

Your level of participation is up to you. Your commitment can range from simply answering some questionnaires to full participation – doing some tasks involving words, sentences, pictures, and sounds; doing puzzles; solving problems; completing some brain-activity measurements; and giving a blood sample.

This study is currently funded by the National Science Foundation and the National Institutes of Health. All participants are compensated for their time, as well as for travel and parking.

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fragile-x-studies