Seeking families to help us figure out the fragile X equation.

The Neurodevelopmental Diversity Laboratory at Northwestern University is currently recruiting participants for an investigation intended to:

  1. study carriers of the FMR1 premutation to determine how language and other skills developed over their childhood; and
  2. identify characteristics potentially related to the FMR1 gene, and understand how they might relate to language and social traits evident across development.

We’re searching for individuals with fragile X syndrome or with the FMR1 premutation and their family members, as well as people without fragile X or the premutation, and their families. We’re currently recruiting families from Greater Chicago, and across the country to complete our in-person and online research activities.

Your level of participation is up to you. Your commitment can range from simply answering some questionnaires to full participation – doing some tasks involving words, sentences, pictures, and sounds; doing puzzles; solving problems; and completing some non-invasive brain-activity measurements.

This study is currently funded by the National Institutes of Health. All participants are compensated for their time, as well as for travel and parking.

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